Share Your Story
By clicking this box, I confirm the following things: I am this child's legal guardian with explicit permission to share this story and have given permission to Global Hydranencephaly Foundation to share in digital and print awareness materials. I understand that permission must be granted by also filling out the contact & permission form, which is good for 3 years. It cannot be revoked without formal written request sent via USPS.
Submit
Thanks for submitting!