In the Spotlight:

Our Mission:
Through the Global Hydranencephaly Foundation, a greater passion will be shared as families are networked across the globe to insure every child given this diagnosis has the opportunity to live and thrive in the quality of life they deserve. Families will be offered support, information, guidance and resources. Through education and awareness campaigns, the medical community will become enlightened to the possibilities that exist for these children and the world will learn to accept this condition as simply an obstacle in the lives of these little miracles.

Our Vision:
Though a budding foundation, the efforts have the potential to change the lives of thousands of families across the globe; many already involved with the cause. Grants will be awarded for assistance with therapeutic services, equipment, medical costs, and other financial responsibilities of caring for these children. Information for adoption and designated care to insure families are not overwhelmed by the amount of involvement required in caring for these children will also be shared. Awareness campaigns and merchandise to create recognition of the cause and what this condition is will be made available. The foundation will be guided by individual family needs as it grows. The ultimate goal is not to cure, simply to insure these little lives are allowed to shine.

The Everything Guide to Children with Hydranencephaly
Please feel free to print our original guide
for your personal use

Available in PDF or WORD

Packet also available translated
into the following languages:

Please contact web administrator to request translation of your language if you do not see it listed here.